We made it!

After 15 or 16 hours on the road we are finally here. We stayed in St. Joseph, Michigan Saturday night before finishing the trip out on Sunday. Making it across the Michigan state line was a small victory on Saturday with both kids in the car. Actually both did really well. Mia did a great job entertaining her brother. Mason hit his limit though around St. Joseph so it was the right time for all of us to stop. We had no idea where we were going to stay but then we decided to stay somewhere along Lake Michigan so the kids could see the lake and step foot on a beach (something Mia has always wanted to do). We couldn't have picked a better spot. St. Joseph is right on the water. It was one of those places that makes you think: "Why do I live in the middle of nowhere?" Oh yeah it's called jobs, family, KU basketball, etc....the important things.

Our first consultation is first thing Monday morning. It's with one of the pediatric surgeons here at U of M. We won't know what the next week or two holds for us until after that initial consultation. They may want to do another consultation/exam or two before doing any kind of surgery. Hopefully a g-tube is all he needs and whatever surgery he has goes smoothly. We really want to get that tube out of his throat so he will be more inclined to eat and grow. It would also be nice to see him with out a feeding tube taped to his face. He's had that thing on his face pretty much since his first week of life. What's interesting is that following his 2nd heart surgery one of the doctors up here told us in passing, out of the blue, if you are going to do anything else the best time is between the 2nd and 3rd heart surgery. So hopefully now is the right time.

Well tomorrow will be interesting. On top of the appointment we told Mia we would take her up to the family resource center on the 8th floor of Motts so she can play. She hasn't forgotten that place one bit. We'll add some pictures later. We'll keep you updated as well.