Update from Kansas.....Is it really October?

Is it really October? I can't believe it's been almost 2 months since our last update! You will be happy to hear it's been an uneventful 2 months. Actually let me correct myself, it's been an uneventful month-and-a-half. The first week or two back home was a little crazy. Mason was having problems with hives and rashes while he was in the hospital. We figured it was stress and/or anxiety related and that once we got him home it would stop. It didn't stop so we spent the first two weeks at home in and out of the hospital and doctor's office trying to figure out what the problem was. We never did figure out what the problem was, but eventually the hives and rashes stopped. So maybe his body just needed a little more time to calm down. These kids really do go through a lot.

The one good thing that came out of all of that excitement is we discovered he didn't need his blood pressure medication anymore. One less med! He's still on a couple diuretics and Sildenafil, which is the big one. That drug is what got Mason through his last 2 surgeries. They initially took him off of it following this last surgery (Fontan) but after speaking with his surgeon, we all agreed we should put Mason back on it and slowly ween him down. So we are going to slowly ween him down or off of it over the next 9-12 months. Starting next month. So keep Mason in your thoughts and prayers as we go through this. We would really like to get Mason off of this drug without any setbacks or challenges.

That said Mason is doing great today. Don't confuse that with "he is a sweet little angel that never gets into trouble". Actually, it is quite the opposite. He is a typical, ornery little boy. Who thinks putting himself into time-out is all part of the game. He is also a blessing who reminds us each day miracles do happen and that the most important thing in life is to enjoy life. Again thanks for your thoughts and prayers along the way, Mason and many other children like him are proof the thoughts and prayers do work! Now I need to figure out what he did with my car keys!