There is no place like home!

Mason was released from the hospital on Thursday afternoon.

First, the cardiologist called to explain her conversation with U of M. Apparently, Mason's surgeon was out of the office so she spoke to the head of cardiac surgery about Mason's stroke. U of M wants to wait 6 weeks before doing a cath and agreed that going up on his aspirin was the right answer. Mason's surgeon should be calling us next week to discuss when we will be making our next trip to Michigan. Then the neurologist stopped by to assess Mason before we left. He thought that Mason still had some weakness in his legs and was not walking steadily. So, we will see him in a month to reassess. We also go orders to see his cardiologist in a month and pediatrician in a week. Whatever it takes to get out of the hospital!

I signed the papers and we were off! Once we got home and in his normal surroundings it was more obvious to me that he did have some stability issues when he walked. This has already gotten better in the last few days. I would say he is about 98%. REMARKABLE! Randy and I couldn't believe how happy Mason was to be home. He played and laughed like I have never seen before. It also seems that he is talking more, too. Randy and I have both noticed it. He is trying to talk in more sentences and I even heard him trying to sing the theme song to one of his favorite TV shows.

And if that wasn't exciting enough, Mia lost her first tooth Saturday morning! She is getting so big. She had been worried about this all week. Her and Daddy finally worked at it enough, it just popped out! We put it in a little plastic ziplock bag and started wondering what the tooth fairy would bring her. Then I started cleaning because the house had been neglected all week. Late afternoon Randy asked Mia where her tooth was - and she couldn't find it. We looked and looked - no luck. Then finally I thought about what had been on the table when I was cleaning. Could there have been a plastic bag on it that I might have thrown away? After digging through the trash, I located the little plastic bag with the very tiny tooth. Disaster avoided! Mia woke up Sunday morning excited that the tooth fairy had left her $2. She then informed me that bigger teeth are worth more - did you know that the tooth fairy will leave you $5 for a molar?

So, our house is getting back to normal. Mia's spring break is over. Mason is acting like nothing happened. Now, we start planning for Mason's big 2nd Birthday in less than 2 weeks!

Thank you all for your support and prayers through this last week and through the last 2 years!

Stroke

It has been confirmed that Mason had a stroke. The MRI showed damage in the back left side of his brain but the artery leading to it now is wide open. As soon as the diagnosis came in at 6:30 tonight, things started happening. Within minutes, they were there to give him an EKG and said that his cardiologist would be there in 15 minutes to do an echo to see if there were any other clots. His EKG and echo looked the same and she could not see any other clots. Now, an echo is not as good as a heart cath. She will be calling Mason's surgeon in Michigan in the morning to find out if they want to do a cath or add another med to thin his blood. If a cath needs to be done, we will be going to Michigan. We should know more in the morning. Those are the facts. How do a feel about this? I am pretty calm and in a good place. I actually wasn't at the hospital when the doctor gave the diagnosis to Randy. I was at home recharging for another long night at the hospital. While at home I got to thinking about what the worse possible outcome could be. I knew we could handle another med for seizures but kept thinking about the worst. I really believe that this is what had prepared me to handle the true outcome because I had already thought about what could be. Although I wish Mason would not have had the stroke, I do realize that we are very fortunate. Mason has regain most, if not all, of the function in his right arm. It is hard to tell today since he is still feeling the effects of the sedation drug. We should know better tomorrow. I am focusing all my energy on how do we make sure that this doesn't happen again. How do we protect our baby from this happening again? Because next time, it may not be the good of an outcome. We know Mason is going to need a pre-op cath for his next heart surgery so I say we go ahead and do it. This will give us a better idea if there are any other looming stroke risks and we would find out if he is ready for his next surgery. Unfortunately, I am not a doctor and won't be making this decision. Thank you all for keeping Mason in your thoughts and prayers. Please keep them coming. I truly believe I have a miracle baby. 25 years ago they had no way of treating his heart condition or his lung issues. The pediatrician that heard his heart murmur when no one else did gave him a chance to live. He coded 3 days after his first heart surgery and we were told that 1 out of 500 survive that type of complication. He has now had a stroke and has recovered only days later. MIRACLE?? I think so!

Quick Update

Mason has regained the use of his right arm. What the doctors think is that he had a seizure with Todd's paralysis (not sure if I spelled that right). This means that he had short term paralysis after a seizure. We spent most of the morning trying to get the Wichita sedation team to agree to sedate him for an EEG and MRI. They have finally agreed but it is too late today to do it. So, tentatively it will start at 11 am tomorrow. Mason has come around and is in better spirits - eating a little and even laughing a couple of times. He is still very tired which can either be from the seizure or the fact that they bugged him until 3:30 in the morning. Either way, he is returning to our Mason. Please pray that the results of the EEG and MRI are promising and this was a one time event. Mason does seem to be twitching or having muscle spasms randomly. Or maybe it is just my heightened sense of awarement. I just want to get the tests done so I can have piece of mind or at least a path. Please also pray that Mason is accepting of the doctors and nurses. The poor baby says "all done" when they come to see him. Hopefully, we will have a restful night - as much that can be had in a hospital - and be able to come home tomorrow.

Please pray for Mason

Mason had what we believe was a seizure tonight that left his right side paralyzed. He is being admitted to the hospital for observation. Mason had been running a fever and we had even seen the pediatrician late this afternoon. When he woke up from his nap, his right arm was twitching and then he refused to use it. We rushed him to the ER and after a moderately successful cat scan, we do not believe it is due to a bleed in his brain. All other test are encouraging. Right now it is pointing to the fever that he had. They will observe him overnight and we will see the neurologist in the morning.

One small step for man, one giant leap for Mason-kind!

Skipping ahead here but I thought I would share something very news worthy and exciting regarding Mason. The little guy has taken a giant step forward in the eating department. There was nothing gradual about it either. Mason went from having a complete oral aversion to 'eating' about 2 weeks ago and he hasn't stopped since. As a matter of fact he wants to eat everything in sight. Now I use the term 'eat' loosely, it's more like licking or lapping it up with is tongue. Which by the way, you should see his tongue. It's huge. Quite impressive really. Or very efficient I should say. Anyway, he is still learning how to eat so he uses his tongue instead and gnaws at things. Whatever works is fine with us. The fact that he is trying foods like he is, is a major development milestone for Mason. So far the only thing he has not liked is chocolate cake (sad day for dad). In the picture above he is eating (or licking) a bowl of re-fried beans, yes re-fried beans. I'm telling ya, there is nothing the kid won't eat.