Monday, November 28, 2011

Feed Tube is Coming Out!

Mason's cardiologist appointment was torture for all of us. The results were good but it took all our energy. Mason just wasn't in the mood and pretty much cried for the 2 hours we were there. He was starting a cold and hadn't slept well the night before which means we hadn't slept well the night before either. The good news is Mason's oxygen saturation was 94! This is the highest we have ever seen it and it was while he was crying so it could have been even higher. The echo was pretty much the same. The cardiologist was not ready to make any adjustments to his medications at this time so Randy and I will be doing some research on that before we see her again. His next appointment is in 6 months!

Since that appointment, we have been making some phone calls to a couple GI doctors we have seen over the past year or so. We were trying to get some advice on when to remove Mason's tube and what the after care would be like. After some back and forth phone calls, we have the go ahead to remove it. If it continues to leak, he might need the surgeon to put a "stitch" in it to close it. So, now Randy and I need to decide on the big day. I am so excited for this. Mason is definitely aware of it and it does bother him sometimes. He is also becoming self-conscious about it to the point if his shirt gets pulled up, he will immediately pull it down.

Thanksgiving was a good time. We traveled back to Missouri to see my family even though Randy was not feeling well. He stayed in bed all Thanksgiving Day and did not get the participate in the fun and festivities. He didn't have it all bad - there was lots of football to watch! He did recuperate in time to drive back to Kansas on Sunday and stop at his family's party. It was great to see everyone. We have a lot to be thankful for this year!

Hope you all had a great Thanksgiving as well. Thanks for checking in on us. We will keep you updated on how the feeding tube removal goes. Please keep Mason in your thoughts and prayers that his tube site will heal with little discomfort.

Have a safe and wonderful Christmas. We love you all!